I will be giving a free gift card holder with every order from my shop to mark DMD awareness day.
September 7th marks World Duchenne Awareness Day. It’s on 7/9 in recognition of the 79 exons on the Dystrophin gene (where the mutations occur).
It causes muscles to become progressively weaker, gradually weakening essential body functions.
Globally, Duchenne Muscular Dystrophy affects 1 in 3,600 boys, with just 1 in 50,000,000 girls being affected to the same extent.
Your purchase supports adults with dystrophy.
All three charities (where profits from these gifts go to) support people with Duchenne. Specifically, DMD Pathfinders is unique in supporting adults to live longer, healthier fulfilling lives – being run by people living with DMD.
LIVING LONGER, HEALTHIER FULFILLING LIVES
It is possible to achieve remarkable things with Duchenne Muscular Dystrophy (DMD)
With the right help and support we can travel around the world, gain a PhD, become a published author, graphic designer, music promoter…the sky’s the limit!
Adults with DMD are living longer. There are an estimated 500 people in the UK aged over 18 with Duchenne plus many more with Duchenne-like types of dystrophy.
No-one expected us to live this long. As a result, organisations and agencies that were originally created to advise and support our parents/carers have been slow to respond to our needs.
Leave a Reply